Resource Orientation for Stroke & Aphasia

Reach the survivors standard outreach keeps missing.

ROSA is a structured, survivor-led orientation model that re-engages stroke and aphasia patients who fell off the pathway, then produces a trust-ready population before any institution makes its ask.

ROSA makes sure stroke survivors and their families know what resources exist and how to use them, so they reconnect with care and have better outcomes.

The Problem

The gap is neurological, not motivational.

Survivors are contacted. Follow-ups are scheduled. Care teams do their job. Yet a subset of patients still disengage. Not because they won't, but because they can't yet. The format, timing, and framing of standard outreach and standard enrollment land before survivors are neurologically ready to act.

Cognitive overload

Processing speed, working memory, and decision-making are compromised in the first weeks home, even in survivors who appear to be doing well.

Aphasia & communication

Written instructions and phone follow-up assume intact language processing. For survivors with aphasia, the format itself is the barrier.

Neurofatigue & timing

Post-stroke fatigue is a real neurological phenomenon. Standard timing rarely accounts for the window in which survivors can meaningfully engage.

The Model

One structured session. Built for how survivors actually engage.

ROSA is a ninety-minute, survivor-led orientation, delivered in a group format with clinicians present in a supporting role. It fits inside a partner's existing post-discharge infrastructure and asks very little operationally.

  • 90-minute structured orientation
  • Survivor-led delivery
  • Clinicians present in a supporting role
  • Voluntary participation
  • Aphasia-friendly throughout
  • Quarterly access points
  • Open return at any stage of recovery
Who It Serves

The population you can't otherwise reach.

ROSA is built first for survivors who have already slipped through the system. The ones no referral, reminder, or recruitment email still reaches.

Primary Cohort · 6 to 8 Months Out

Survivors who fell off the pathway.

Re-entry, not re-diagnosis.
  • No new referral required, and a face-saving way back in
  • Reintroduces survivors to therapy and the care system, or to research opportunities
  • Teaches unbranded stroke prevention, not tied to any one program
  • Ends with concrete next steps, not more information
Secondary Cohort · 0 to 60 Days

Newly discharged home.

Caught before they drift.
  • Discharged home without inpatient rehab
  • Invited 1 to 2 weeks post-discharge
  • Care partners attend as full participants
Research Opportunity

A trust-ready pool, with governance kept clean.

For industry and university partners, ROSA does the hardest part before enrollment ever comes up. It earns the trust of a population that research usually can't reach, inside a structure that keeps your compliance intact.

How It's Governed

Your institution holds the reins.

  • IRB held and managed by the partnering institution
  • Research lane kept physically separate from education
  • Opt-in only, opening after the session ends
  • No PHI transfers to Rivers Speaking Solutions
  • No BAA required on the RSS side
What It Produces

Engagement before the ask.

  • A survivor population already oriented and engaged
  • Access to participants standard recruitment misses
  • Aphasia-inclusive design built into every session
  • Feasibility and engagement signal before enrollment
  • Trust earned by a survivor, not requested cold
Why It Works

Trust is the mechanism.

  • 1Survivor facilitation builds trust that clinical outreach cannot replicate.
  • 2Timing aligns with when survivors are ready, not when discharge happens.
  • 3The group format normalizes the experience instead of isolating it.
  • 4Information is aphasia-friendly and immediately usable.
  • 5The session ends with an appointment in the calendar, not a number on paper.
Strategic Alignment

Clear lanes. Minimal lift.

Your Institution Provides

Clinical infrastructure

  • Patient access and outreach workflows
  • One clinical contributor per session
  • Research capability and IRB, where applicable
ROSA Provides

Community-facing access

  • Survivor-led orientation and aphasia-friendly curriculum
  • Facilitation, session management, and workbooks
  • Attendance and follow-up reporting
Program Standards

Built to work inside your compliance, not around it.

Education-focused, not clinical care

Patient outreach stays within the health system

Aligned with HIPAA considerations

Led by CITI-certified professionals

No independent handling of protected health information

Facilitation led by CITI Program certified credentials.
  • Good Clinical Practice
  • Biomedical Research
  • Social & Behavioral Research
  • Community Research
Proven in the Field

Built through real community delivery.

ROSA was shaped by delivering it in the room, with survivors, care partners, and clinical teams. That real-world experience refined the flow, sharpened the model, and proved what works before anyone is asked to invest in it. What comes to your facility is a program that has already run.

Ready to bring ROSA to your facility?
A ROSA orientation session, faces obscured for privacy
A ROSA orientation in session
Welcome to ROSA session screen
Welcome to ROSA, October 2023
Resource and partner tables, identities obscured for privacy
Connecting survivors to resources and partners
Partner With ROSA

Ready to bring ROSA to your facility?

Whatever you are trying to move, whether enrollment, research access, or care continuity, ROSA is the community-facing layer you can build on. Choose your path.

For industry & pharma

Sponsor a partnership

Reach engaged, representative participants and build trust before the enrollment ask, with your IRB, your PHI, and your workflows left fully intact.

Start a conversation →
For universities & research

Bring ROSA to your study

Plug a community-facing, aphasia-inclusive orientation into your recruitment and feasibility work, reaching survivors your protocols rarely see.

Start a conversation →
For hospital systems

Bring ROSA to your region

Re-engage the patients who fell off your follow-up pathway and route them back into care, inside your existing post-discharge infrastructure.

Start a conversation →
The Bottom Line

Survivors don't need more information. They need structured access to it, at the right time, in a format they can actually use.